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Lymphangiomatosis & Gorham's Disease Alliance
Lymphangiomatosis and Gorhams Vanishing Bone Disease
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In loving memory of our son and brother,
Marcus.

Picture from the funeral
Marcus Veng Petersen, Born 10th september 1996, dead  7th September 2004

We will always love you.

Lymphangiomatosis and Gorham's Vanishing Bone Disease

This page is made by a small family in Denmark, because our son has been diagnosed with the "Gorham's Vanishing Bone Disease" or "Lymphangiomatosis" These two diseases are very similar to each other, some even say that it is the same disease, but fortunately for us, the treatment is the same. We will try to make this page as informative as possible so others will have a chance to find out what this is all about. We now have a good site running, but we are still working on the site, but take a look around, and please contact us, so that we can exchange experiences.

Marcus in maj 2007, we love you
The family behind the site Lymphangiomatosis and Gorham's Vanishing Bone Disease. www.gorhams.dk

Synonyms for Gorham's Vanishing Bone Disease / Lymphangiomatosis:

Lymphangiomatosis, Gorham's Vanishing Bone Disease, Gorham's Disease, Thoracic lymphangiomatosis, Disappearing Bone Disease, Gorham's Syndrome, Gorham-Stout Syndrome, Idiopathic Massive Osteolysis, Massive Gorham Osteolysis, Massive Osteolysis, Morbus Gorham-Stout Disease, Phantom Bone Disease, Progressive Massive Osteolysis, Disseminated lymphangiomatosis, Vanishing Bone Disease, Essential Osteolysis, Acro-Osteolysis Syndromes, Gorham Disease, Hajdu-Cheney Syndrome, Idiopathic Multicentric Osteolysis, Massive Osteolysis, Acro-Osteolysis Syndrome, Lymphangiomatosis-hepatic, Lymphangiomatosis-splenic, Essential Osteolyis, Cystic angiomatosis of bone, Diffuse Pulmonary Lymphangiomatosis.

 

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