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Lymphangiomatosis & Gorham's Disease Alliance
Pictures, X-rays and MR scanning
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Dexa scan results 27 oktober 2003Click piture for a larger image

Here is the results from our six Dexa scanning. See the results compared to the other Dexa scansnew!

picture that compares his hands, LymphangiomatosisClick picture for a larger image

Here is a picture comparing our sons hands, where the top of the picture is taken in the morning, and the bottom of the picture is taken in the evening.

picture that compares his hands, LyphangiomatosisClick picture for a larger image

Here is another picture also comparing his hands, but from another angle. After the closure of the thoracic duct, his hand is now almost normal size when he wakes up. Before there was only a small difference.

picture showing the scars after his lung operations Click picture for a larger image

Here is a picture showing the scars on his back after 3 lung operations.

picture showing a lymphagiom on the right albowClick picture for a larger image

Here is a picture showing a lymphangiom on his right elbow, this must have some bad effects, we think, but no operation has been decided yet.

Image showing a MR scanning of thoraxClick picture for a larger image

This is a MR scanning taken when our son was 3 years old. At this time we thought that the diagnose "Klippel-Trenaunay syndrome" was right

image showing a complete MR scanning of thoraxClick picture for a larger image

this is the complete MR scanning taken at that time

 image showing Xray from the 5 August 2002  front of thoraxClick picture for a larger image

X-ray of the thorax (front view), taken the 5 of August 2002. The trained eye can see the problem with the lungs.

 image showing Xray from the 5 August 2002  side of thoraxClick picture for a larger image

X-ray of the thorax (side view), taken the 5 of August 2002. The trained eye can see the problem with the lungs.

 image showing Xray from the 5 september 2002  front of thoraxClick picture for a larger image

X-ray of the thorax (front view), taken the 5 of September 2002. The trained eye can see the healing proces of the lungs.

Image showing where the nail was in his lower right armClick picture for a larger image

X-ray taken of his right lower arm, (front view, showing the nail. Notice how weak the bones are in his arm

Image showing where the nail was in his lower right armClick picture for a larger image

X-ray taken of his right lower arm, (side view) showing the nail. Notice how weak the bones are in his arm

picture showing the results from our first dexa scan from 15 august 2002 Click picture for a larger image

Here is the results from our first Dexa scan, conducted the 15 august 2002

picture showing the results from our first dexa scan from 18 november 2002 Click picture for a larger image

Here is the results from our second Dexa scan conducted 18 november 2002, and wauw what a diffence !

small image of dexascan from 6 february 2003 Click picture for a larger image

Here is the results from our third Dexa scan conducted 6 february 2003, and once again the results was very very good !!!!!

small image of dexascan from 8 may 2003 Click picture for a larger image

Here is the results from our fourth Dexa scan conducted 8 may 2003, this time there was slow improvement, but also some reduction, particular in lower spine and right ribs.

 small image of dexa scan 18 august 2003 Click picture for a larger image

Here is the results from our fifth Dexa scanning. See the results compared to the other Dexa scan.

picture of port-a-cath Click picture for a larger image

This is a picture showing a port-a-cath, which is operated under his skin at the left breast. Click here to read more about this

picture showing the drain from his lung Click picture for a larger image

This picture shows what a drain treatment is.

marcus arm have some changes in the colours Click picture for a larger image

Picture taken july 5, 2003 shows some changes in the colours of the arm.

picture shows changes in the colours of the arm Click picture for a larger image

Picture taken july 5, 2003 shows some changes in the colours of the arm.

picture shows some changes in the colours of the arm Click picture for a larger image

Picture taken july 5, 2003 shows some changes in the colours of the arm.

Here is simply a picture showing who this is all about, A young boy called Marcus. Click picture for a larger image

Here is simply a picture showing who this is all about, A young boy called Marcus.

 

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